Thursday, August 23, 2007

Yippee!!!!!!!!!!

Johnathan received a clean bill of health two days ago. The doctors and nurses wanted to wait another 36 hours before releasing him, and another 24 hours before telling anyone their plans.

Johnathan will be going home at noon today.

Thank you all for everything you have done to support our family during the most difficult time we have ever had. But, with your support, many prayers and thoughts, this chapter ends with a great note.

Johnathan will be in his own bed, right next to Mommy tonight.

:)

Monday, August 20, 2007

More Great News!!!

Johnathan only has a small oxygen tube in his nose. All other tubes and IV's have been removed.

Mommy Kate and Daddy Carlton were able to hold him yesterday for the first time in nine days. His remarkably quick recovery can only be attributed to the excellent care he received in the NICU and all of your support!

He will be coming home sometime later this week.

I can't begin to thank you all for the support, prayers and well wishes. I will send out a note when it is confirmed that he is coming home. There will be pictures to come!!!

Friday, August 17, 2007

Great News!!!

Johnathan is not only a fighter he is a very loved baby!

I say this as we return from the late night visit when, in the past, we had only set backs, tonight we have great news!

Johnathan had his transfusion and it went well. The PIC IV was inserted without incident. They only had to prick him once! Placement of the PIC IV was followed up with an x-ray to ensure his heart was not punctured - success!

Oxygen is now set at 25%. If you recall from earlier posts normal air we breathe is at 21%. His blood oxygen level is at 106. We all have levels between 80 and 95, so he is high, which is great! Earlier in his plight he was on 100% oxygen and at 50 breaths per minute on the respirator. He is now down to 30 on the respirator and his breaths are at 40-45 per minute. He continues to breathe on his own with a little assistance or reassurance from the respirator.

John is now taking food (mommy's milk) through a feeding tube. The next steps are to get him fully acclimated on the milk and wean him off of the IV. He will soon be weaned off of the ventilator (tomorrow? Saturday??)

Katy and Carlton (Mom and Dad) did want me to pass a message on to all of you: "Your prayers, well wishes and thoughts are what they are attributing to Johnathan's baby steps toward recovery."

Thank you!

Thursday, August 16, 2007

Update on Baby Johnathan

Johnathan is now down to 40% oxygen as of noon today. His blood gas levels continue to fluctuate, but at present his blood oxygen level is in the mid 90's, up from 70 earlier this morning. (We live hour to hour for these results now.) He has had 9cc's in his feeding tube and is handling that very well. He is breathing at 50 - 55 reps per minute while the intubation machine is set to 35. So he continues to try to breathe on his own which is excellent news. He will have a transfusion later today to replenish and boost his current blood levels. He has difficulty producing his own red blood cells while his body pushes to mature his lungs.

He will have a repeat of the echo-cardiogram and chest x-ray this afternoon when they insert a PIC IV to replace the catheter and the IV in his arm. The PIC IV is more long term than the regular IV which needs to be re-inserted in a new location every so often to avoid infection. This way he will not need to be poked as much.

Thank you all for your continued support through all of this.

Wednesday, August 15, 2007

More on Baby Johnathan

Johnathan is continuing to take some baby steps to getting better. After a short set back he is now down to 57% oxygen, on the respirator still. As long as his oxygen level of 90-100 continues they will continue to lower the oxygen percentage in his respirator. He received an additional dose of synthetic membrane to his lungs.

Although everything continues to improve slowly, he is still critical. They are planning on doing a blood transfusion later this evening based on his lowering counts of hemoglobin. His breathing is stable at 35-40 reps per minute. The feeding tube and respirator are irritating him so they have sedated him to keep him calm while his lungs accept the membrane and develop. The doctor insists that when this is over there will be no residual affects of his condition, the treatments, etc.... unless (always a caveat) if he remains on the respirator for any length of time like two weeks or more then he could develop some conditions related to that. At this point they do not believe he will be on the machines that long. It is an hour by hour situation though.

Please note: Gulf Coast Blood Bank schedules a quarterly visit to the Houston HP campus. All blood types are useful. However, O Negative is the choice for newborns as it is a universal blood type. O Negative individuals are in high demand and low in the population. If you don't know your blood type, they will type you when you give blood.

You can donate in his name, Johnathan David Norman, just let them know that he is at Cy-Fair Hospital.

Thank you for all your prayers!!! They are much appreciated!

Monday, August 13, 2007

UPdate on Baby John

Well, he seems to be doing about the same as yesterday. He is becoming more jaundice, so they now have him lying on a Bil-Blanket, a blanket with green lights that glow to remove the excess bilirubin. I talked to Katy this morning and she says the green glow from underneath him makes him look like a glow-worm. I talked to my mom just a minute ago and she said they may have to do a spinal tap to be sure he is not becoming septic. He is have a few wet diapers a day though. Sepsis is a blood infection that can be caused by the spread of an infection into the blood. They are not certain that he needs the spinal tap it is just another one of those "it could be, so we would need to do this" things.

On a lighter note, after the boys said their prayers last night, Jay said a special prayer just for Johnathan. In his little voice he said "God, please keep baby Johnathan safe, please don't make him blind, and please don't let him scribble"
What??? Blind? Scribble? So, I had to ask, "Jay why did you ask God not to make John blind?"
Jay said, "So that he can see all the things I want to show him."
Good enough, "what about the scribbling part?"
Jay said "I don't want him to scribble on the walls and then I would get blamed for it."
Do you think maybe sometime in the past few days the child may have scribbled on the wall? Could he be passing blame onto John already? Not Jay!!!
Then, the child felt compelled to add "God, I promise that I will never, never, never, never, never, never, never, never, hit Johnathan."
AJ and Jay love that little boy so much!! We all do, again thank you all for all your prayers and well wishes for our family.

Sunday, August 12, 2007

More Good News

So the doctors have now given a name to Johnathan's rapid breathing- pulmonary hypertension. I think I could have come up with that one:). Either way, his right lug has now inflated completely on it own, the left lung is a little hazy from the x-ray, it is still undetermined if it is due to infection or because he is lacking a coating that is supposed to cover the inside of his lungs. The blood culture is still negative, and we have two more days to wait on that, but that is still good news! His breathing has begun to stabilize, it is still a little rapid, but it is consistently rapid which is much better than being sporadic and rapid. His blood pressure has come up, in his case this is also a good sign. The nurses are going to start weening him off of the oxygen today, they did not do that last night like we thought. His blood gases are saying between 97 and 100 which is excellent.

Thank you all for all your prayers, thoughts and support through out this. It is greatly appreciated and welcomed!

Saturday, August 11, 2007

Good News!!!

The doctor just saw our little angel and he said that is blood gases are with in range so he should not need to be intubated. He has a valve in his heart that is not closing properly, they say this is a common occurrence even in full term babies, and should be healed in 3-5 days. They were able to take him off the oxygen and he is stable and maintaining his oxygen levels well. They believe that his lung is inflating on it's own so there still is no need to insert the tube into his lung to inflate it. They will be doing an x-ray tomorrow and hopefully we will get a definitive answer!
Thank you for all the prayers, as you can see his condition can change from one minute to the next.

Another Update

Johnathan is not doing as well as we hoped. It seems that none of John's numbers are remaining stable. It also seems that we are surrounded by negative people and nobody has a definitive answer to any question asked. There is a lot of speculation on why he is having such troubles but no real answer. No this is what it is, this is how we fix it, and this is how long it takes.
I guess it is a true example of how things are not in our control. It is all left up to our creator.
This is a constant battle for me to know that there really are things I have no control over. You have no idea how badly I want to go in there and "fix" him. But, I can't, to tell you the truth, we can't even hold him, touch him, talk to him or stand closer than three feet from him. It is too much stimulation for him and all the alarms on his monitor begin sounding the minute someone even opens the door to the NI CU. We have to pray that the Lord knows how and when to heal this little angel, that by the grace of God this little fighter we have will be healed and with our Fathers guidance the doctors and staff at the hospital will be able to aid in his healing.
For now, I pray that he is comfortable through the night and there will be better news in the morning.

Update!!!

As of about ten minutes ago, Johnathan was seen by the doctor. The doctor said that he is now able to lay on his stomach, his respiration rate is now in the 90's, still not in the "normal range" but much lower than the 140/ minute that it was at earlier today. They will not intubate, and will not run a tube through his ribs into the collapsed lung. At the moment it appears that he is doing a lot better. That is the best news we have had. The not-so-optimistic pediatrician informed us that it is not uncommon for babies to "take one step forward before they take two steps back" keep in mind this is the same genius that told my sister that of all the babies in the NI CU, even the 3lb. baby, Johnathan was the sickest.
I say, what does he know? He only went to medical school for 8-12 years, he is not our creator and he is not the one who decides our fate.
On that note, thank you for all the prayers and please keep them coming, I know that little man is a fighter and he is not ready to give up!!

Prayers for Johnathan Please




My precious little nephew, Johnathan David Norman, was born Thursday, August 9, 2007, at about 9:30 PM. He is three weeks premature and was not responding well after the delivery. My sister had a long, rough, stressful labor and the nurses and doctors were attributing John's lack of response to the labor and the stress. He was taken into the NI CU that night and was released about 2:30 AM. Yesterday he seemed to be doing well, he had bruising around his mouth from being bagged the night before, and his fingers, lips, and feet were a little purple, but not cold. This too was attributed to the stress of the labor and delivery. This morning around 4:30AM he was readmitted to the NI CU. The doctors said he has a collapsed lung and he also has pneumonia. Currently he is on antibiotics and oxygen, as well as an IV to receive his nutrition. My sister is being released today, the hospital is trying to arrange accommodations for her so she does not have to leave the hospital and go home with out her sweet boy. He will have to stay in the hospital a little longer.


Please pray for a speedy, complete recovery for this little guy. Also, pray for his parents, he is their first born and this is a very rough time for them.









Friday, August 3, 2007

Celebrating 50 years!!!


We had an eventful weekend! Family in town, a fiftith birthday party, and I learned how to make Gumbo!!!


A feat in itself let me tell you. For something with a very limited ammount of ingredients, you can sure mess that up in a quick minute.




Any who, I decided that after many twelve hour work days I needed a vacation, this vacation was used to thouroghly clean my neglected house. Because, let's face it, as much as i would like to be considered Wonder Woman I am not, and my house won't clean itself while I work all day. So I cleaned, and cleaned, and then I cleaned parts of my house I had never even seen before! It was great!!




Then, I pick up the children (because no REAL cleaning can be done with children in the house, aside from the dangers of all the fantastic chemicals I get to play with, they would be in some other room making a much bigger mess, much bigger that in my wildest dreams!) At the daycare, the teacher tells me how "uncontrallable" Jay was.


Really??- uncontrolable? he is four, how uncontrollable can he be?




Well, that sent me into a tizzy, my child doesn't listen, my husband has been out of town for a week- I am not having fun, not at all.




Friday I decided to keep the boys home with me we are going to take the dog to the groomers, since our back yard has become his personal mud bath. So my giant horse, I mean dog, and the two boys load up in the car- in the pouring rain- and head to the groomer's.




I wrangle him out of the car as he drags me into the groomer's and we find out that he is behind on the shots I thought that my husband took him to get, well, Jesse thought I took him. So, back in the car you go, a soaking wet dog, two wet boys, and my covered in the dog hair that should have been left at the groomer's and not comming back home with me! I am just glad we can remember to pick up the boys and take them for their shots!!




So now my child doesn't listen, my husband's still not home, and my dog is an ungodly mess!




Anyone know a good dog trainer in Houston? This family needs one!!


Next get ready for company!!!


They arrive at about three- just about the time I realize the boys have discovered a use for all that unused empty space under their bed. Yep- the mess that once was, was no more, to the untrained eye that is. Look a little closer or lower in this case, and there it was in all it's magnitude, the giant mess had found a new home and they were very proud of their accomplishment- until I pulled out the broom along with everything under the bed and made them actually put things away where they belong! I am such a mean mom!!


All of this and still no husband, he was on his way home, a 13 hour drive from the other side of ElPaso- or the world, whichever it really is the same thing.


Saturday let the cooking begin- oh wait, we need food for that right???


Let the shopping begin!! On anyother occasion I would be exstatic to hear or say those words, just don't add teh word Kroger, that takes all the fun out of it!! Either way Off I went on a shopping extraviganza to feed an army or two that would later arrive to help celebrate my Father-in-law's 50th birthday. There I was almost needing to get another cart and I ran into A who, I haven't seen in almost 4 years, really entirely too long because a couple of years before that we were inseperable!! That unexpected chance encounter added about 45 minutes to my shopping experience, but really what is more fun that running into a long lost firiend and catching up in the middle of the grocery store?


Ok, I went home and unloaded the food and then, Let the cooking begin! I flet like this day should be turned into a marathon! Shopping, cooking, cleaning, oh wait we don't have foil, back to the store you go.


This time I had company, my mother-in-law and Aunt M. Let me tell you when they put up those little yellow signs that say "Caution Wet Floor" it means the floor is actually wet- who knew? I might suggest not trying to brace yourself on the display of $8.99/ bottle of wine, the results are never good! No I did not break a single on of them, but oh, the visions, the visions of fermented grape juce and glass all over the floor were enough for me to now thake extreame caution when seeing that little yellow sign!!




Back home to finish cooking and great the guests as they arrive! The night was so much fun!! The kids all played great together ll played well it was great!




Oh, Sunday wake up early, clean the kitchen, learn how to make Gumbo. Easy as pie right? Um- why didn't anyone tell me it takes the better part of teh day to make Gumbo before I agreed to this??? Before there was so much cooking going on in my house that it was registering 82 degrees inside. Oh my word was it hot!!! Sit down, eat Gumbo, say our goodbyes, family left, time for a nap, oh wait I need to clean this mess up!




"Uh, babe?" i heard from the other room, "where is the plunger?"




Why why could we possibly need a plunger at a time like this? When it looks like some un named natural disaster has torn trough the house I took vacation to clean???




Jesse: "the toilet is clogged."


Megan: "Use the other bathroom."


Jesse: "uh, that one is too."




Oh, you have got to be kidding me! Off to Home Depot!




Come home, fix the toilets, clean the kitchen, take a nap!!!




It was a great weekend dispite the fact that I did not stop moving the entire time!!